Tuesday, March 24, 2015

96 Days Since Diagnosis

and 24 days since I started an Autoimmune Protocol.


Commander Carrier Strike Group 9 Staff Dining Out 2015 Downtown San DiegoOn day 12 of the autoimmune protocol I had a cheat night.  It was the Navy Dining Out that night and since meals were pre-ordered back in January it was not possible to change or adjust.  I didn't decide until my last blood work in February that I would try AIP.  Later that evening I had bloating, during the night I had a sore throat, stuffy nose and itchy inner ears.  The following morning was not a good one.  I had a significant mood swing; angry, irritable, crying.  I was much better by the afternoon.

The following morning I jumped right back onto AIP.  I haven't had another cheat meal or day yet however I did try and test some things back into the diet.  I had some of the homemade probiotic for two nights but noticed that I had the sore throat, stuffy nose and itchy inner ear at night.  I tried that for two nights in a row.  Right now I am using brown sugar and molasses with my water kefir.  I feel that this may be a trigger in my diet.  Now I will need to determine which one of those things or if it is both.  I ordered coconut sugar and will try that when it comes in.

Rikki at Dining Out 2015 Downtown San Diego
On the 18th of March I took my final pill from the original 90 that were prescribed.  Okay please don't freak out on me.  I know that this is not good.  However with 9 days of pills left I called to put in a refill request.  When I called the main endocrinology line one of the options to choose from is prescription refills.  I choose that option since I needed a refill.  The gentleman on the phone took my information and made sure he had the correct prescription (there is only one at this time), made sure he was processing it through to the appropriate clinic (I was pleased he asked because I didn't want to go all the way in to Balboa for it) and then told me it would take 7 to 10 business days.  I thought okay that should be enough time I have 9 days of pills.  Well I guess all the above was incorrect because I never heard from anyone that the prescription was ready and I have checked online and don't see a prescription pickup status anywhere.  I also called the pharmacy folks and left a message for someone to get back to me on the status but no one returned my phone call.  So I have been without the pills since the 18th.  Yes I have already learned that I was wrong and should have left a message for the RN to refill before calling the refill line.

Last night I put the gummy vitamins back in the diet and had the sore throat, stuffy nose and itchy inner ear at night.  I had another bad morning.  Nathan came with me for a jog this morning.  We took Angel and I didn't think that was a good idea because when I want to run to relieve stress she doesn't help.  She is getting older so I expect her to slow down.  That and I think she can sense that I am not calm.  Nathan took her for me so that I could run but it meant that he sacrificed his workout this morning before jumping on a 13 hour flight to Rio.  That was not nice of me but I was pleased that he did that for me.  After the run was that rush of anger, irritability and a crying fit.  There are three triggers that I think could have caused this reaction; stress from Nathan being out for 10 days, stress over bloodwork and allergist appointment in the next week, end of menses (sorry TMI) and the gummies.

I did some research today on anger and Graves' Disease and found this helpful link, https://www.facebook.com/Thyroid.GravesDisease.Support/posts/672270089464631.  Lots of helpful comments to the post and some helpful scientific research to prove that mood swings are a symptom of Graves' Disease.

I am asking all of you, my family, my friends to please be extra patient with me.  If you haven't noticed any changes great!  If you have noticed a change, I am sorry!  My body is struggling to find a new "normal" and until it does I am afraid I am going to be a crazy, hormonal teenager.  At least that is what my mood swings feel like to me, even though I am in my mid-thirties, and that makes sense to me because the thyroid gland and pituitary gland control hormone function.

I will update you again after the appointment with the allergist.

Sunday, March 08, 2015

80 Days Since Diagnosis.......

and it has been a week since I started autoimmune protocol.

This last week I have been a little cranky.  Autoimmune Protocol recommends cutting out some things that may trigger your autoimmune system to go into overdrive and in my case attack my thyroid.  One follows a paleo diet with some restrictions.  I was surprised to learn in all my research after my diagnosis at how many "diseases" are autoimmune diseases.

While doing research on Autoimmune Protocol I was going in every two weeks to have my blood checked.  I have had various thyroid tests/testing done.  The tests are showing that my TSH levels are finally registering on the scale and my T4 levels are coming down.  The last test the TSH levels were a little higher but not in normal range and my T4 levels are close to the low end range.  It is a combination of this, my T4 levels near low end range, and the fact that I have been on the pills for almost 80 days and they aren't working as well as I had liked, as to the reason why I started Autoimmune Protocol.  I am on the same 10mg pill of methimazole that I was put on to start.

The other thing I found when doing research is that those with hyperthyroidism have an increased chance of becoming hypothyroidism.  I would rather try to fix this problem some other way than take the pills and end up with hypothyroidism and be on more pills.

I do have an appointment with the allergist at the end of the month.  I was very much hoping that the allergist would be able to help me figure out what the heck I am allergic too.  I did some reading on that as well and since I started a gluten free diet there is a chance I may not be able to find out what I am allergic too.  I guess I will wait and see what happens when I speak with them.

The cravings are pretty bad.  I would love some chocolate, a piece of cake, a donut, some bread for lunch.  There is hope though.  I did have to order some special items on Amazon today and I will be able to make cake soon.  It may not be this week but soon.

I go in for blood work again at the end of the month to check the thyroid.  I honestly don't know if I am doing enough for the autoimmune protocol to work.  I would like to think that blood work test at the end of the month will prove one way or the other.

Some resources that I am using for help with Autoimmune Protocol diet:

  1. Book - http://www.amazon.com/The-Autoimmune-Paleo-Cookbook-Allergen-Free/dp/0578135213
  2. Facebook Page - https://www.facebook.com/autoimmunepaleo